Health and Wellness Information

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International Web Sites Relating to
Assistive Technology & Universal Design
by Jane Berliss-Vincent

[This article identifies a number of Web sites on assistive technology after first defining assistive technology and universal design.] 

Technology
Electronic devices are becoming increasingly important in the lives of many disabled individuals around the world. It is true that assistive technology (technology designed specifically to meet the needs of an individual with one or more disabilities) can open doors by providing assistance with communication, transportation, and other activities of daily living. 

It is also true that mainstream technology can provide a further barrier if a range of user variability, including disability, age, and body type, is not taken into account. 

Appropriateness of Technology
When exploring options for assistive technology, it is critical to remember that there is seldom if ever a best technology for a given situation.  continue article on Assistive Technology and Universal Design

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FACT SHEET: Health, Wellness, & Disability: 
Perspectives of Persons with Disability
by Mary Oschwald and Laurie Powers Introduction 

New models of health and wellness specific to people with disabilities are broadening our understanding of what it means to live healthy and well and live with a long-term disability. 

Though theoretical models of the intersections among health, wellness, and disability may be new, living healthy and well is not something new for people with disabilities.  For years, people with disabilities have used strategies to maintain health and wellness, created supportive relationships, and accessed needed resources from various service systems. 

It is from these resourceful people that we will continue learning about issues related to health, wellness and long-term disability. continue reading Fact Sheet

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WEB CAST ON: Health and Wellness Among Persons with Disabilities

What does it mean to live healthy and well when you have a disability? Find out what people who have disabilities say.  Hear how consumers with disabilities define health and wellness as well as barriers and facilitators to being healthy.

Laurie Powers and Michelle Putnam discuss these and other findings from a research project involving 19 focus groups of consumers.  This research was conducted as part of the Research and Training Center on Health, Wellness, and Disability at the Oregon Institute on Disability and Development of the Oregon Health Sciences University.

CLICK HERE TO LISTEN TO AN AUDIO RECORDING OF THE WEB CAST as well as to obtain an agenda and handout materials. Information about the presenters is also provided. The Web cast includes captioning for individuals with severe hearing loss. 

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Managed Care Tool Kit: A Primer for the Independent Living Field
by Pamela Dautel and Mary Faithfull

Written for consumers, family members, and programs serving people with disabilities, the Tool Kit covers information that people with disabilities require in making informed health care purchasing decisions and in managing their specific health plans. 

Because 48 states in the U.S. as well as the District of Columbia either require or allow their Medicaid recipients to enroll in some form of managed care, the Tool Kit addresses Medicaid managed health care issues. 

Chapters in the Tool Kit include: 

  • an overview of Medicaid, how health care has changed, 
  • the role of independent living centers in managed care, 
  • untangling the Medicaid managed care enrollment maze, 
  • other roles for ILCS and disabilities organizations, and
  • understanding Medicaid recipients. 
The Tool Kit also includes an appendix with Web site resources, a glossary, and the Health, Options, Plans brochure (an easy to follow, stepbystep approach that leads consumers through the process of choosing a health care plan). The Tool Kit was produced as part of the Research and Training Center on Managed Health Care and Disability, jointly operated by National Rehabilitation Hospital’s Center on Health & Disability Research and the ILRU Program. 

Click here for a copy of the Tool Kit.

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FROM SCI LIFE--INTERNATIONAL
UNITED STATES--Legal Protections for People with Disabilities in Managed Care

In the U.S., people with disabilities, along with other individuals without disabilities, may receive less than adequate medical care in managed care arrangements. Both groups may experience problems due to the complexity and lack of flexibility in some managed care organizations (MCOs), but the stakes are often higher for people with disabilities. 

Staff of the Rehabilitation Research and Training Center on Managed Health Care and Disability have prepared a comprehensive electronic handbook which presents legal protections for people with disabilities participating in managed care programs.

The authors note that there are a number of federal and state laws and regulations that affect the terms and conditions of the delivery of health care to individuals in MCOs. Federal and state anti-discrimination laws may be used to challenge practices that result in inferior treatment for individuals with disabilities; other laws may be used to challenge practices that may not constitute discrimination per se, but deny access to needed health care. To date, a number of suits have been brought against state agencies responsible for Medicaid managed care programs and MCOs using the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act. 

These challenges have met with varying degrees of success. In this document, some of these cases are highlighted. What has been learned from these cases is that there is power in these laws. 
To obtain a copy of the handbook, go to http://www.ilru.org/mgdcare/rrtcnewsletter.html#Using the Medicaid Act.

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Physical Activity, Motivation and People with Disabilities

Empowerment from physical activity provides not simply a physiological benefit for people with disabilities, but can drastically affect on a person's psychology. 

Basic advantages such as cardiovascular endurance, an increase in muscle strength, endurance and flexibility directly benefit other health-related conditions such as diabetes, colon cancer, cardiovascular diseases, osteoporosis, arthritis and many other disorders.

But equally advantageous, exercise can decrease anxiety and depression; positive improvements in emotions, self-esteem, and self-confidence surface. Children with disabilities should be motivated and provided an environment to participate in physical activities, which requires training of parents, guardians, coaches and staff. 

Maria Kosma of the RTC on Health and Wellness & for People with Disabilities, and colleagues Dr. Brad Cardinal and Dr. Jeff McCubbin discuss and answer questions on the role of physical activity, motivation and people with disabilities. to continue reading about Physical Activity, Motivation and People with Disabilities)

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Application of the Concept of Health & Wellness to People with Disabilities: From Academia to Real Life

  • Getting tired of people equating disability with illness?
  • Looking for a way to help people understand health and wellness in terms of disability?
  • How can you motivate yourself to make health related behavior changes?
Carla Culley gives a practical discussion on how the concept of health and wellness applies to people with disabilities, and what you can do about it.

What is wellness? Carla says traditionally health and wellness have been thought of as the mere absence of disease and disability, and this is known as the medical model. The problem is that it promotes the idea that one cannot be well while living with a disability. . . . to continue reading about Application of the Concept of Health & Wellness to People with Disabilities

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Physical Activity, Motivation and People with Disabilities
Motivating Individuals With Disabilities To Be Physically Active

Increasing the number of individuals with disabilities who are physically active is a public health priority [United States Department of Health and Human Services (USDHHS), 2001]. The purpose of this presentation is to report motivational strategies aimed toward physical activity participation. The benefits of exercise/physical activity for certain disability types will be presented as a reminder of the importance of an active lifestyle. Physical activity concerns will also be reported in order to introduce certain considerations when trying to identify ways to increase motivation. . . . to continue reading about Physical Activity, Motivation and People with Disabilities 

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  ©2002 ILRU Program. All rights reserved. 

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ILRU is a program of The Institute for Rehabilitation and Research (TIRR), and is affiliated with Baylor College of Medicine. This Web site was developed and is supported in part by Baylor College of Medicine. ILRU is supported in part by public and private funding agencies including the U.S. Department of Education--National Institute on Disability and Rehabilitation Research (NIDRR) and the Rehabilitation Services Administration (RSA)--and the Robert Wood Johnson Foundation. See individual project descriptions for further information on these organizations.