Updated August 2000
by Carri George

Allen, L. (1999) Interpreters Membership Insurance. Houston: ILRU.

Batavia, D. (1999) The Role of Independent Living Centers in Meeting the Health Care Needs of People with Disabilities. Houston: ILRU.

Batavia, D. (1998) Independent Living Centers and Managed Care: Results of an ILRU Study on the Current Level of Direct Involvement. Houston: ILRU.

Beneke, K. (1999) Disabled People's International's Fifth World Assembly As Reported by Two U.S. Participants. Houston: ILRU.

Beneke, K. (1999) Housing and Independence: How Innovative CILs Are Breaking Down Barriers to Housing for People with Disabilities. Houston: ILRU.

Bowe, F. (1992). Equal Rights for Americans with Disabilities. New York: Franklin Watts, Inc.

Brown, S. (2000) Freedom of Movement: Independent Living and Philosophy. Houston: ILRU.

Brown, S. (1999) Communicating at the End of the Twentieth Century: Innovative Computer Programs. Houston: ILRU.

Brown, S. (1999) Peer Counseling: Advocacy-Oriented Peer Support--Part One. Houston: ILRU.

Brown, S. (1999) Advocacy-Oriented Peer Support Part Two: Moving from Talk to Action. Houston: ILRU.

Brown, A. (1999) Strengthening the Roles of Independent Living Centers as Advocates for People with Disabilities Through the Implementation of Legal Services. Houston: ILRU.

Brown, S. (1999) Innovative Programs: An Example of How CILs Can Put Their Work in the Context of Disability Culture. Houston: ILRU.

Carter, T. (2000) Peer Counseling: Roles, Functions, Boundaries. Houston: ILRU.

Castellani, J. (2000) The AdLib, Inc. Drop-In Center: Consumer Management, Ownership and Empowerment. Houston: ILRU.
Christenson, D., Harrington, T., Webb, S. (2000) Serving Adults with Cognitive Disabilities.

Crosson, K. (1999) Access Design Services: CILs as Experts. Houston: ILRU.

Dautel, P., Frieden, L. (1999) Consumer Choice and Control: Personal Attendant Services and Supports in America. Houston: ILRU

DeJong, G. (1982) Environmental Accessibility and Independent Living Outcomes: Directions for Disability Policy and Research. East Lansing: University Center for International Rehabilitation.

DeJong, G. (1983) “Physical Disability and Public Policy.” Scientific American 248, no. 6:40-49.

DeJong, G., Hughes, J. (1981) Report of the Sturbridge Conference on Independent Living Services. Boston: Tufts Medical Rehabilitation Research and Training Center.

DeJong, G. (1979) “Independent Living: From Social Movement to Analytic Paradigm.” Archives of Physical Medicine and Rehabilitation 60: 435-446.

Denk, J., Shreve, M., Richards, L., King, K., Smith, L. and Smith Q. (1994) Applying Marketing Principles. Staying on Track: ILRU Management Support Series. Houston: ILRU.

Donovan, M., Jones, M. (1994) Housing. Issues in Rural Independence, No. 3. Houston: ILRU.

Fasser, C., Smith, Q., Frieden, L., Smith, L., Holcomb, J. (1994) “Addressing the Health Care Needs of People with Disabilities.” Journal of the American Academy of Physician Assistants 7, no. 1: 26-32.

Harmon, G., Ladd, J., and Evans, E. (1991) “Being a player: A guide to the ILRU lobbying regulations for advocacy charities.” A Report by the Advocacy Forum; A Project of the Alliance for Justice. Washington, D. C.: Harmon, Curran, Gallagher & Spielberg.

House, R., Richards, L., Rennick, V., Jones, D., Dresden, C. (1998) Expanding your Management Foundation: Readings in Management Literature: Strategic Planning. Houston: ILRU.

House, R., Richards, L., Rennick, V., Jones, D., Dresden, C., and Smith, Q. (1995). Expanding Your Management Foundation: Readings in Management Literature--Strategic Planning. Houston: ILRU.

Irwin, J. (1999) Experts Meeting on Managed Care: How People with Disabilities Are Affected by Medicaid Managed Healthcare Programs. Houston: ILRU.

Kailes, J. (1994). Disability Pride: The Interrelationship of Self Worth, Self Empowerment, and Disability Culture. Houston: ILRU.

Kailes, J., Jones, D. (1993) A Guide to Planning Accessible Meetings. Houston: ILRU.

Kailes, J. (1998) Putting Advocacy Rhetoric Into Practice: The Role of the Independent Living Center. Issues in Independent Living No. 8. Houston: ILRU.

Kailes, J. (1997) Centers for Independent Living. 12 pages. Self-published.

Kailes, J. (1984) “Language is More Than a Trivial Concern!” Reprinted in Disability Pride and A Guide to Planning Accessible Meetings (available through ILRU publications).

Kailes, J. (1993) Disability Pride: The Interrelationship of Self Worth, Self Empowerment, & Disability Culture. Houston: ILRU.

Kailes, J. (1995) Americans with Disabilities Act Compliance Guide for Organizations. 225 pages. Self-published.

Kailes, J. (1996) Resource List: Wellness, Self-Care, Exercise & Aging with Disability. Research and Training Center on Aging with Disability. Los Angeles, California. Third Edition.

Kailes, J. (1997) Advocacy: Reality or Rhetoric Inventory. 5 pages. A popular questionnaire tool used to help evaluate if an independent living center or other disability related organization is truly committed to advocacy and systems change. Revised. Self-published.

Lachat, M. (1988) The Independent Living Service Model: Historical Roots, Core Elements, and Current Practice. Hampton: Center for Resource Management.

Michaels, B., Richards, L., Dresden, C., Heinsohn, D. (1998) Frequently Asked Questions About Lobbying and CILs. Houston: ILRU.

Michaels, B. (1998) Frequently Asked Questions About Multiple Chemical Sensitivity. Houston: ILRU.

Michaels, B., Richards, L. (1997) Frequently Asked Questions--Lobbying. Houston: ILRU.

Michaels, B., Kailes, J., Richards, L., Dresden, C., Heinsohn, D., Hughey, AM, Kemp Moye, D. (1996) Information You Can Use: The Rehabilitation Act 4 Fact Sheets. Houston: ILRU.

Michaels, B., Richards, L. (1997) Training Funds for SILCs and a Summary of SILC Survey Issues. Houston: ILRU

Michaels, Bob, Richards, Laurel. (1997) Training Funds for SILCs and a Summary of SILC Survey Issues. Houston: ILRU.
Miller, G. (1994) Accessibility. Issues in Rural Independence, No. 2. Houston: ILRU.

Myers, L. (1999) People with Disabilities and Abuse: Implications for Centers for Independent Living. Houston: ILRU.

National Council on the Handicapped (now the National Council on Disability). (1986) Toward Independence: An Assessment of Federal Laws and Programs Affecting Persons with Disabilities - With Legislative Recommendations. Available from NCD, 1331 F Street, NW, Suite 1050, Washington, DC 20004 (202) 272-2004 (v), 272-2074 (TTY).

National Council on the Handicapped (now the National Council on Disability). (1988) On the Threshold of Independence: A Report to the President and the Congress of the United States. Available from NCD (see above).

Nosek, P., Narita, Y., Dart, Y., Dart, J. (1982) A Philosophical Foundation for the Independent Living & Disability Rights Movement. Occasional Paper No. 1. Houston: ILRU.

O’Day, B. (1999) Independence and Transition to Community Living: The Role of the Independent Living Center. Houston: ILRU.

O’Day, B. (1998) Part Two: A Preview of Independence & Transition to Community Living: The Role of Independent Living Centers. Houston: ILRU.

O’Day, B. (1994) Attitudes. Issues in Rural Independence, No. 1. Houston: ILRU.

O’Day, B. (1998) A Preview of Independence & Transition to Community Living: The Role of Independent Living Centers. Houston: ILRU.

Obatake, M., Rude-Ozaki, R., Fischlowitz-Leong, B., Fouts, D., Suyat, V. (1999) DiverseAbilities: An Outcome of Organizational Collaboration and Operational Integration.

Pendergrass, Lee Ann. (1997) Findings from ILRU SILC Study. Houston: ILRU.

Pflueger, S. (1977) Independent Living. Emerging Issues in Rehabilitation. Washington, D.C.: Institute for Research Utilization.

Pusch, B., Dautel, P. (1999) 1998 Workforce Investment Act: Full Service or No Service. Houston: ILRU.

Redford, D., Whitaker-Lee, P. (1999) Peer Mentor Volunteers: Empowering People for Change. Houston: ILRU.

Richards, L., Smith, Q. (1987) An Orientation to Independent Living Centers. Houston: ILRU.

Shapiro, J. (1993) No Pity. New York: Random House, Inc.

Shreve, Maggie (1982) The Movement for Independent Living: A Brief History -- Attitudes Started It All

Smith, Q., Frieden, L., Richards, L. (1994) “Independent Living.” Encyclopedia of Disability and Rehabilitation. New York: Macmillan, Inc.

Smith, Q., Frieden, L., and Richards, L. (1995). Independent Living. Encyclopedia of Disability and Rehabilitation. New York: Simon and Schuster.

Smith, Q., Frieden, L., and Richards, L. (1995). Independent Living. Encyclopedia of Disability and Rehabilitation. New York: Simon and Schuster.

Smith, Q., Frieden, L., Nelson, M., and Tilbor, A. (1996). Transition to adulthood for young people with spinal cord injury. The Child with a Spinal Cord Injury. Chicago: American Academy of Orthopedic Surgeons.

Smith Q., Frieden L., Nelson M., and Tilbor A. (1995) Transition to Adulthood for Young People with Spinal Cord Injury. The Child with a Spinal Cord Injury. Chicago: American Academy of Orthopedic Surgeons.

Smith, Q., Smith, L., King, K., Frieden, L., Richards, L. (1993). Health Care Reform, Independent Living, and People With Disabilities. Issues in Independent Living No. 11. Houston: ILRU.

Smith, L., Smith, Q., Richards, L., Frieden, L., King, K. (1994) Independent living centers: Moving into the 21st century. American Rehabilitation.

Smucker, B. (1991). The Nonprofit Lobbying Guide: Advocating Your Cause--and Getting Results. San Francisco: Jossey-Bass, Inc.

Sykes, R., Reed, K., and Spooner, P. (1995, revised edition). DIMENET Manual. Dayton: Greater Independence Through Management.

Thayer, T. (1999) Temporary Employment Services in Independent Living Centers. Houston: ILRU.

Thayer, T. (1999) The Relationship Between Independent Living and Vocational Rehabilitation: Married, Divorced, or Living Together. Houston: ILRU.

United States Department of Education. (1986) Comprehensive Evaluation of the Title VII, Part B of the Rehabilitation Act of 1973, as Amended, Centers for Independent Living Program. Available through clearinghouses (see below).

Walden, E., Roy, D., O’Day, B. (1994) Transportation. Issues in Rural Independence, No. 4. Houston: ILRU.

Ward, M. (1999) Demand Response Transportation Through a Rural ILC. Houston: ILRU.

Wilkinson, W. and Dresden, C. (1996). Ethical implications of the ADA as it evolves. Journal of Neurorehabilitation. Vol. 1, No. 1.

Williams, T. (2000) Touch/Ability Connects People with Disabilities and Alternative Health Care Practitioners.

Willig, C. (1988) A People’s History of Independent Living. Available from the Research and Training Center on Independent Living, 4089 Dole Building, University of Kansas 66045; (913) 864-4095 (v/TTY).

Wright, B. (1999) Parent Centers and Independent Living Centers: Collectively We=re Stronger. Houston: ILRU.

Yeager, P., Richards, L., Gerken-Redd, L. (1998) Getting the Most Out of Consultation Services. Houston: ILRU.

Young, C., O’Day, B. (1995) Funding. Issues in Rural Independence, No. 5. Houston: ILRU.

In a special edition on independent living in American Rehabilitation 20, no. 1 (Spring 1994):

Giordiano, G., D’Alonzo, B. “The Link Between Transition and Independent Living,” 2-7.

Shreve, M. “The Greater Vision: An Advocate’s Reflections on the Rehabilitation Act Amendments of 1992,” 8-13.

Smith, L., Smith, Q., Richards, L., Frieden, L., King, K. “Independent Living Centers: Moving Into the 21st Century,” 14-22.

Chappell, J. “The Whole is Greater Than the Sum of its Parts,” 23-29.

Moore, J., Stephens, B. “Independent Living Services for Older Individuals Who are Blind: Issues and Practices,” 30-34.

Montagano, T. “Bringing the Rehabilitation Family Together: An IL-VR Partnership,” 35-36.

Lougheed, V., Hunter, B., Wilson, S. “Partners for Independence: A Team Approach to Community-Based Rehabilitation,” 37-38.

Baker, D. “Independent Living in Communities: The Role of the Independence Fund in Vermont,” 39-41.

Lachat, M. “Using the Power of Management Information System Technology to Support the Goals of Centers for Independent Living,” 42-48.

In a special issue on independent living in OSERS 6, no. 2 (Winter-Spring 1994):

French, D. “Independent Living: Driven By Principles of Democracy,” 37-38.

Kafka, B. “Perspectives on Personal Assistance Services,” 11-13.

Kennedy, J., Zukas, H., Litvak, S. “Independent Living and Personal Assistance Services: The Research, Training, and Technical Assistance Programs at the World Institute on Disability,” 43-45.

Mathews, M. “Learning from the Experts: Best Practices in Rural Independent Living,” 23-29.

Michaels, R. “Title VII: A Major Step Forward,” 8-10.

Nelson, J. “Changes in the Rehabilitation Act of 1973 and Federal Regulations,” 4-8.

Smith, Q., Frieden, L., Richards, L., Redd, L. “Improving Management Effectiveness in Independent Living Centers through Research and Training,” 30-36.

Tate, D., Daugherty, J. “The Effects of Insurance Benefits Coverage: Does It Affect Persons with Spinal Cord Injury?” 19-22.

Westbrook, J. “Consumer-Driven Supported Employment: Consolidating Services for People with Significant Disabilities,” 14-18.

Ziegler, M. “How Parent Networks Are Working with Independent Living Centers,” 39-42.

In a special issue on rural independent living in the Rural Special Education Quarterly 11, no. 1 (1992):

Clay, J. “Native American Independent Living,” 41-50.

Curl, R., Hall, S., Chisholm, L., Rule, S. “Co-workers as Trainers for Entry-level Workers: A Competitive Employment Model for Individuals with Disabilities,” 31-35.

Most of the readings cited above can be obtained from resource clearinghouses. Several are listed below and can be reached for further information about publications and modem-accessible databases by mail or telephone.

• National Clearinghouse of Rehabilitation Training Materials, Oklahoma State University, 816 West Sixth Ave., Stillwater, OK 74078 (800) 223-5219.

• National Rehabilitation Information Center (NARIC), 8455 Colesville Road, Suite 935, Silver Spring, MD 20910 (800) 346-2742 (v), 227-0216 (TTY).

• ERIC Clearinghouse on Disabilities and Gifted Education (formerly the ERIC Clearinghouse on Handicapped and Gifted Children), 1920 Association Dr., Reston, VA 22091, (800) 328-0272 (v/TTY) at the Council for Exceptional Children, (703) 620-3660, ext. 307 (v).

ILRU also offers a number of publications and other materials on various independent living subjects. For a listing of resource materials contact ILRU at 2323 S. Shepherd, Suite 1000, Houston, TX 77019, (713) 520-0232 (v), 520-5136 (TTY). http://www.ilru.org/Publications/index.html

For resource materials and technical assistance on the Americans with Disabilities Act, there are ten regional Disability and Business Technical Assistance Centers (DBTACs). One toll-free number, 1-800-949-4232, will direct your call to a technical assistant in your region. Resource materials are published by the U.S. Department of Justice and many are available free of charge. The Disability Law Resource Project in Houston, Texas offers technical assistance and some resource materials in Spanish as well as English.

The mission of the IL NET is to provide training and technical assistance on a variety of issues central to independent living today--understanding the Rehab Act, what the statewide independent living council is and how it can operate most effectively, management issues for centers for independent living, systems advocacy, computer networking, and others. Training activities are conducted conference-style, via long-distance communication, webcasts, through widely disseminated print and audio materials, and through the promotion of a strong national network of centers and individuals in the independent living field.

Substantial support for development of this publication was provided by the Rehabilitation Services Administration, U.S. Department of Education. The content is the responsibility of ILRU and no official endorsement of the Department of Education should be inferred.

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