"Cash and Counseling: A Model for Self-Determination" Suzanne Crisp Consumer-Direction "Not doing things by yourself - but being in charge of how things are done." - Judith Heumann ! Consumer controls --what, when, how & who Consumer-Direction ! Consumers are the best judge of their needs & approach ! Should be able to choose services & who provides those services ! Use flexibility to tailor solutions ! Crosses disability (types and degrees), culture, funding & age Consumer Direction Myths ! Fraud ! Abuse ! Exploitation ! Not interested ! Lack ability ! Health will decline ! Too vulnerable ! Case managers know best ! Agency services are superior Cash & Counseling ! Sponsors - Robert Wood Johnson Foundation & US Health and Human Services ! Use Medicaid funding ! Large scale ! Rigorous evaluation ! Develop the national model Why Cash and Counseling? ! Offer more choices ! Expand work force ! Tangible advancement to show disability community ! Opportunity for technical assistance ! Save $$$$ Independent Choices The Arkansas Approach: An opportunity to exchange Agency personal care services for a monthly cash allowance The Cash ! Allowance -- Based on personal assistance needs -- Approximately $8.00 per hour -- Average allowance is $375.00 a month ! Uses of cash -- To meet personal care needs -- Hire personal care assistant -- Purchase items & services related to personal care The Counseling ! Counseling -- Explain program -- Develop expenditure plan -- Offer skills training -- Monitor -- Perform reassessments ! Fiscal support -- Issue allowance -- Maintain savings -- Write checks -- Monitor uses of cash -- Pay taxes -- Report wages Who Is Interested? ! Began December 1998 -- Over 2,000 choosers -- 73% age 65 or older -- 44% use a representative -- 76% live in rural areas -- 60% White, 30% African American -- 15% of population enrolled Uses of the Cash ! 82% hire a personal assistant ! 85% family members ! 15% friend or neighbor ! 16% personal supplies, medicine or home modifications ! 2% save How's It Going? ! AR 1st in nation ! 100% satisfied ! 80% satisfied with lives ! 93% would recommend ! 98% know who they hire ! 4 -5 say lives have improved ! Most have chronic illnesses ! 95% pleased with assistant times ! Zero say worse off Ms. Millie "Hiring my daughter makes me feel independent. I know she is always there. She knows what I like and what I don't like." Ms. Lillie "I understand Grandma better than anyone. When it's your own you're looking after, you pay more attention." The Observations ! Comfortable with self-direction & enjoy independence ! Capable of Responsibility ! Biggest benefits: -- Choose assistant/items -- Know when and who -- Non-traditional times ! Allows more services at same cost ! Matches preference with needs ! Amount of services still insufficient The Verdict ! Consumer direction works ! Respects preferences ! Honors dignity/privacy ! Recognizes rights ! Will never replace traditional models ! Considered in ALL program designing More Information www.IndependentChoices.com Suzanne Crisp 501-682-2441 Page