READINGS
in Independent Living

The Ad Lib, Inc. Drop-in Center: Consumer Management, Ownership and Empowerment

2000
by Joe Castellani
A Safe Haven

The staff of Ad Lib, Inc. along with other area providers in Berkshire County, Massachusetts, recognized that people with disabilities are still in many ways socially isolated and need support and programming during non-traditional service delivery hours. This social isolation is especially great on weekends and holidays. Unlike many metropolitan areas, rural Berkshire County does not have a wealth of integrated social recreational programs or places for people with disabilities to meet, socialize, develop a support system, or work on common issues. Many people with disabilities were meeting in restaurants, on the streets, and other public places. Others, who felt uncomfortable in most "mainstream" social settings, simply had no place to go. None of these alternatives was an acceptable outlet for many people with disabilities. To fill this void, a "safe haven" was needed for all people with disabilities.

Today, Ad Lib's Drop-In Center (DIC) is that safe haven. At 5pm on weekdays and 12 noon on Saturdays and Sundays, members begin assembling at the Drop-In Center. Some hook up with a friend to go to supper. Others bring a meal with them or order out. Many members choose to eat their meal at the DIC in order to be with friends or to share something they may have prepared at home. Regular and Leader Staff use this meal time to meet with the Coordinator to discuss and plan for the night's activities.

Almost as soon as the DIC opens its doors, recreational activities begin. The pool table cover is removed and members pair up for nightly rounds of eight ball. Pool tournaments are a common and favorite activity for many members. Other members turn on the television to watch the nightly news or scout out programming for the evening. On any given night a member might also go to an outside recreational event, such as a shopping trip, baseball game, art show, or movie. Quiet activities such as board games, video games, reading, puzzles and arts and crafts are chosen by other members.

Scheduled structured activities occur simultaneously with unstructured activities. Members of the DIC choose what they want to do. So, a Visiting Nurse Association prevention clinic may be occurring in the conference room while a competitive pool tournament is being played in the main section of the center; or a group of members will be shopping at a mall while others remain at the DIC to do arts and crafts projects.

The DIC collaborates with other local service providers to give members the opportunity to participate in more structured activities and training. For example, the agency collaborates with the Berkshire Visiting Nurses Association to provide a monthly prevention clinic. Nurses visit the DIC one time per month and perform blood pressure checks, temperature checks, monitor height and weight, administer flu shots, and administer pneumonia shots. On average, 25 - 30 consumers see the nurses per session.

Another collaborative effort is with the Community Access to the Arts Program. This program provides members with instruction in fabric painting, weaving on a wooden frame, and wood art. Projects are then displayed at a local museum and an agency open house.

Amidst all of this activity, the DIC Coordinator can be found providing one-on-one counseling, advocating, or supervising nightly activities. The Coordinator's time is at a premium because many members choose to work on their independent living goals through the DIC. While the Coordinator may refer members to other Ad Lib daytime staff, she also works with members on housing, benefits, educational, parenting, and vocational goals.

Making the Plan a Reality

Working with consumer groups led by the Berkshire Area Department of Mental Health's Advisory Board, Ad Lib staff received direct consumer input and information about the need for a cross-disability social recreational center. Ad Lib, Inc. and its board of directors agreed that the program fit in nicely with the independent living center's philosophy and mission.

During the start-up phase of the program, Ad Lib collaborated with the Department of Mental Health, other human service providers, and interested disability groups to generate resources to renovate a space at Ad Lib's main office location. The physical layout of the Drop-In Center was simple and modest. The Drop-In Center was basically a large open room distinct and separate from the CIL's main offices. Consumers and the community quickly began adding a personal touch to the DIC by contributing artwork, games, crafts, books, furniture and other household items.

When Ad Lib moved into new office space in 1997, a larger, more modern space was allocated to the DIC in order to accommodate the large growth in membership. Staffing was also a collaborative effort between Ad Lib and other interested parties in the community. While the goal was to have a drop-in center that would be open 365 days per year, this was not possible at first. In September of 1990, the Drop-In Center opened its doors. The DIC was open two to three evenings per week and was primarily staffed by Ad Lib employees and volunteers.

Measures of Success

The Drop-In Center's membership has grown from a handful of people utilizing the program in 1990 to more than 500 active members in 2000. In fact, over the past three years membership has increased on average by 100 consumers per year. The average nightly attendance at the DIC this past year was 51, with a high attendance of 76 and a low attendance of 28. The program is an open referral program. An individual can become a member of the DIC simply by completing an intake with a staff person. All information documented on the intake is self-reported and voluntary.

A second measurement of the DIC's success is the program's ability to operate with all consumer staff and/or volunteers. In the early days of the program, the DIC relied on Ad Lib daytime employees to staff the center. Today, the DIC employs one full-time Coordinator, one half-time Leader Staff, and 10-15 Regular Consumer Staff. All of these DIC staff are people with disabilities and members of the Drop-In Center. The program no longer needs staff and volunteers from the CIL or other agencies.

While the development of the program was heavily influenced by local mental health groups, the intent of Ad Lib was always to create an atmosphere and environment where all consumers would feel welcome. Statistics for this past year indicate that the Drop-In Center has developed into a true cross-disability program. Out of a total membership of 528 consumers, 303 did not identify mental illness as their primary disability. In fact, disabilities represented in the DIC membership include brain injury, spinal cord injury, loss of hearing, deafness, blindness, arthritis, cerebral palsy, polio, muscular dystrophy, multiple sclerosis, amputation, orthopedic impairment, psychiatric disabilities, mental retardation, learning disabilities, degenerative disease, diabetes, epilepsy, stroke, spina bifida, speech impairment, chemical dependency and environmental sensitivity.

Staff Development & Training

The Drop-In Center encourages members to become staff and then rewards productivity by empowering them with roles of greater responsibility. This not only empowers DIC members but also recognizes their ownership of the program. There are four levels of responsibility available for members:

  • Member Status - Everyone using the DIC is expected to abide by general rules of conduct. They are responsible for their own behavior but can choose when or if they will accept a greater degree of responsibility.
  • Volunteer - Members who are ready and willing to accept a greater role at the DIC will be assigned regular duties. Assignments will vary and are dependent on the member's abilities, comfort level, and choice in accepting these duties. Volunteers often work regular shifts at the DIC.
  • Regular Staff - A regular staff member is scheduled to work shifts during the week. Regular Staff have various duties but are in a position of greater responsibility for the daily running of the DIC and are paid a stipend for these shifts. Regular Staff assist Leader Staff in record keeping, supervision and maintenance chores of the DIC. Regular Staff attend trainings provided by the CIL and are encouraged to seek out additional relevant training which would be beneficial to them.
  • Leader Staff - Leader Staff have demonstrated that they are capable of managing the nightly activities of the DIC. Leader Staff supervise, counsel, document activities, and solve problems. Leader Staff are paid a stipend for the shifts they work. Leader Staff often take on special assignments like serving as Human Rights Officer for the DIC. They are encouraged to attend and identify relevant trainings.

Drop-In Center staff receive on-going training. The purpose of these trainings is to empower staff to more effectively deal with the day-to-day problems they will be confronted with at the DIC and other work settings. A by-product of staff training is personal growth and development. One former staff member of the Drop-In Center now coordinates Ad Lib's Transportation Program. This staff person's success can be directly related to the experience he received at the DIC.

Other agencies and schools recognize the DIC as a good training ground for their students and consumers. For example, the Drop-In Center accepts interns from Berkshire Community College, the Springfield Technical Community College, and the Massachusetts College of Liberal Arts. The Drop-In Center has also hosted job experiences for consumers from the Department of Mental Health, the Department of Transitional Assistance and the Berkshire Training and Employment Program.

Governance And Leadership

Member leadership and governance is ensured through an active consumer advisory board, member staffing, DIC staff meetings, direct feedback to the DIC Coordinator or other Ad Lib management and access to the grievance process.

The Drop-In Center has a consumer advisory board made up of members, DIC staff, and a CIL board of director's liaison. The board makes recommendations and provides input into the program and its policies. Membership on the committee is open to any active DIC member. The advisory board ensures consumer input and a mechanism for this information to be transmitted to the Ad Lib, Inc. board of directors. Advisory board meetings are held on a quarterly basis.

As was noted above, the DIC is 100% member staffed. Frequent staff meetings are not only used to provide information and training to the DIC's workers, but are also used as a means to obtain feedback and ideas on the operation of the center.

Hours of Operation

The Drop-In Center is open during non-traditional service delivery times. During the work week (Monday through Friday), the DIC is open from 5pm to 10pm. On weekends and holidays, the DIC is open from noon to 8pm.

Transportation

From the inception of the program, there was an understanding that many people would lack the resources to get to and from the DIC. Initially, the Department of Mental Health's contract with Ad Lib provided some funds for the use of taxi vouchers. The Department of Mental Health's idea was to offer transportation in the least stigmatizing, most mainstream way possible. However, this money could only be used for Department of Mental Health consumers and proved not to be the most cost effective way to get people to and from the center.

When Ad Lib began developing a more comprehensive approach to consumer transportation problems and started to develop its own in-house transportation program, the agency's paratransit van became available for DIC use. The use of the van has allowed the program to expand its membership and provide transportation in a more cost effective way. However, no matter what mode of transportation is used, people are encouraged to act as independently as possible. For example, those people in walking distance of the center are encouraged to walk. Likewise, any member having his or her own means of transportation is expected to use these resources.

Funding

Funding for the Drop-In Center currently comes from three primary sources: 1) the Department of Mental Health (DMH), 2) Massachusetts Rehabilitation Commission (MRC) - State Independent Living, and 3) the City of Pittsfield. In addition, Ad Lib collaborates with the Berkshire Visiting Nurses Association and the Access to the Arts Program to provide specialized programming. Ad Lib continues to seek out alternative funding sources to enhance the DIC's programming.

Conclusion

Ad Lib, Inc. operates a member run and managed Drop-In Center. The DIC operates on the principles of empowerment, development and responsibility for all of its members. As members progress, they may choose to move on to more responsible positions within the center.

The Center is a safe place for people to socialize, engage in recreational activities, and access needed services. The DIC is a dynamic program which is responsive to its memberships needs and wants.

In short, the Drop-In Center operates on the core principles of the Independent Living Movement. Consumer control is the key to the DIC's success.

Contact Information

AD LIB
215 North Street
Pittsfield, MA 01201
413.442.7047 (v)
413.442.7194 (TTY)
41413.443.4338 (fax)
Email: adlib@vgernet.net

About the Author

Joseph Castellani is the acting director for Ad Lib, Inc., the center for independent living serving rural Berkshire County, Massachusetts. He has worked for the center for the past four years, most of that time as director of services. His background includes more than 20 years of experience working in the human service field. He holds a Bachelor of Arts degree with postgraduate work in public administration.

 

This document may be reproduced for noncommercial use without prior permission if the author and ILRU are cited.

The mission of the IL NET is to provide training and technical assistance on a variety of issues central to independent living today--understanding the Rehab Act, what the statewide independent living council is and how it can operate most effectively, management issues for centers for independent living, systems advocacy, computer networking, and others. Training activities are conducted conference-style, via long-distance communication, webcasts, through widely disseminated print and audio materials, and through the promotion of a strong national network of centers and individuals in the independent living field.

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Substantial support for development of this publication was provided by the Rehabilitation Services Administration, U.S. Department of Education. The content is the responsibility of ILRU and no official endorsement of the Department of Education should be inferred.

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