READINGS
in Independent Living

ARE YOU "READY"? A Personal Assistant Bonus Program To Recognize Excellent Employees

2001
by Donna Kekstadt

The Northwestern Illinois Center for Independent Living (NICIL) has offered a personal assistant (PA) referral program for the last fifteen years. The personal assistance coordinator recruits and trains a pool of qualified assistants. NICIL's goal is to provide personal assistants who are well trained and who understand and support the independent living philosophy.

Personal assistants in the NICIL pool must successfully complete a two-day training that includes information on specific disabilities, universal safety precautions and bowel and bladder care. People with disabilities who hire assistants speak and answer questions at every session. Participants take a quiz at the end of the orientation.

After completing the training, personal assistants fill out an application. References are checked; and following the return of three good references, a PA is eligible for referral. The PA and the personal assistance coordinator together fill out a profile that indicates where the PA is interested in working, when he or she is available and what he or she is available to do.The person with a disability also completes a profile indicating the hours and types of assistance needed. The personal assistance coordinator matches the consumer and assistant profiles and provides the consumer with a list of potential PAs to interview. The person with a disability is the employer, not NICIL. Personal assistant management training, which covers writing a job description, checking references, interviewing, communicating effectively and preparing for emergency back-up is offered to people with disabilities who request a PA referral. A management manual is left with the consumer and the PA coordinator will assist with interviewing if asked to do so.

NICIL maintains contact with personal assistants who have been hired in order to track their availability. Profiles are updated regularly. Personal assistant trainings are offered at least twice a month so that, as PAs are hired, the program continues to have an active list of people who are available.

Personal assistants are paid by the State of Illinois through the Department of Human Services Home Service program. Any individual in Illinois with a disability that has lasted or will last at least one year and is under the age of sixty may qualify for the Home Service program. The person may own a car, home and have $10,000 in liquid assets and still be eligible. A doctor's verification of disability is required.

A case manager completes a determination of needs, and the Home Service program may then fund a personal assistant to go into the home and assist the person with activities of daily living. The PA is paid $7.00 per hour, with no holidays, sick days, medical, vacation or travel benefits.

The PA turnover is great as the wages are low and there are no benefits, even if an assistant has worked for years for the same person and has been reliable. No merit raises or travel are included. The motivation to stay seems to be the dedication and knowledge the PA has that their job has made it possible for their employer to achieve a dream: to live in his or her own apartment, get up when he or she wants to, eat what he or she likes, go to a movie, have a party and invite friends over, have a job, have a life.

People with disabilities who hire PAs are faced with the challenge of keeping reliable, honest assistants. In trying to identify tangible ways in which employers who are usually on fixed incomes could recognize and reward the PAs who do this important work, the personal assistance coordinator developed the "READY" Bonus program. The "READY" Bonus gives an employer the opportunity to nominate an excellent PA for a $50 award and certificate. The criteria are simple:

ARE YOU "READY"?

R Reliable: Is on time as agreed unless other arrangements have been made.
E Energetic: Uses the time effectively.
A Attitude: Is positive/willing to communicate.
D Demonstrates: An understanding of independent living philosophy through words and actions.
Y Your: Employer's privacy is respected and confidentiality is honored.

To be eligible for the “READY” Bonus, the PA has to have attended the NICIL two-day orientation, had references checked and be in the active PA file. The PA must have worked for at least three months for the employer. A call or letter is all it takes for an employer to nominate a PA. A family member or service provider may also nominate a PA, depending on circumstances. The personal comments are recorded, and one PA is selected by the 15th of the month. The check is delivered in person by the personal assistance coordinator at the consumer’s home and a photo is taken.

Personal assistants who have been recognized in the "READY" Bonus program are then eligible to win a $250 Personal Assistant of the Year award. The twelve excellent personal assistants recognized in the previous year are invited with their employers to NICIL’s annual meeting and a drawing is held, lottery style. One name is drawn from the hat, and the PA must be present to win.

The personal assistance program is funded through the Home Service Grant. Funding for the "READY" Bonus program also comes from that source. NICIL also conducts fund raisers and accepts a $5 donation for the PA orientation. The bonus does not negate the fact that better wages and benefits for personal assistants are necessary. The award is a small token of thanks from the employer and NICIL until a living wage and benefits are reality.

NICIL encourages staff, consumers and personal assistants to advocate for better home and community based services. The Department of Human Services encourages independent living and consumer control; however, funding is disproportionate. Only 20% of allocated money from the state is used for community-based services, while 80% is designated for nursing homes.

NICIL staff provide information and facts about community-based living and equal access for all. The personal assistance coordinator is involved in educating legislators, professionals, family members and community service providers. When new consumers meet with the personal assistance coordinator to fill out a profile, they discuss legal rights, PA wages, obstacles and solutions and working to make a difference. A list of their state and federal legislators is available for consumers who want to write or call about issues that concern them. Issues such as low wages and lack of opportunities for people who may look or sound different are also discussed at personal assistant orientation sessions. Personal assistants are encouraged to get involved and learn how the system works.

These advocacy efforts are making a difference. The successes we have seen involve more than people with disabilities moving into their homes and finding good personal assistance, more than the small PA wage increases. The real success is empowerment, seeing people getting involved, knowing the issues, not giving up, building coalitions and working together. People who would have been evicted because of their disability and lack of knowledge about the Home Service program have remained in their homes. A young mother who was injured in an accident and has a traumatic brain injury was put in a nursing home without her consent. Through advocacy and determination she went back home, received Home Services and hired good personal assistants. She goes to therapy, speaks at orientations and testified at the Committee for Disability Issues in Springfield. This is real life and the success of the personal assistant program. The "READY" Bonus is just a little frosting on the cake!

Contact Information

Donna Kekstadt
Personal Assistance Coordinator
Northwestern Illinois Center for Independent Living.
229 First Ave., Suite 2
Rock Falls, IL 61071
(815) 625-7860 (V)
(815) 625- 7863 (TTY)
nicil@essex1.com

About the Author

Donna Kekstadt, personal assistance coordinator at NICIL for ten years, has a diversified background in the field of education and disabilities. She has a degree in education and is a certified vision and hearing specialist. Donna started an early childhood program and developed a widely used curriculum. She had an accident seventeen years ago with an injury to the brain (invisible disability) and also is a peer counselor at NICIL. Donna's sister is disabled and receives Home Services daily. Donna is an advocacy committee member of the Illinois Network of Centers for Independent Living (INCIL). She is the Co-Chair of the Personal Assistance Coordinator Meeting and has testified before the state legislature. Her goal is to see major changes in allocation of monies for programs that serve people with disabilities and the elderly and to see consumers included in policy making.

 

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