ROUGH DRAFT 9-15-11, Outcome Measures for Centers for Independent Living – An IL NET Resource Presented by ILRU >> MIKE HENDRICKS: Just to let you know, we'll start in 2 minutes, for our online friends. Let's start back. Our friends on line are with us. Bob and I are going to do this session together. We used to watch Monty python. Remember when they said now for something completely different? Anyway, now for something completely different if you have your handouts here that we have been using and you turn to this one, pulling it all together, you notice it is mighty skimpy. There's basically a cover page, a picture of the yellow brick road showing us at the end, then nothing at all. That might reflect how much Bob and I know. Might be an accurate reflection of our knowledge. Or it might be a reflection that this is basically your session. We are at the end of the yellow brick road. We have done all the steps starting from the very beginning, figuring out what the heck we mean by outcome and difference between that and output. We have gone all the way through. We have OUR information. We have actually been using it both inside and outside the CIL. We are at the end of the road. We wanted to be sure there was time to cover things you thought we hadn't done a good enough job on, need to spend more time on, or more questions have come up or whatever. So we took those questions you gave us, what, Tuesday. We have built them in. We actually have more PowerPoints up here than you have. Let me say that again. We're going to be showing you some PowerPoints that you don't have. Because we made them up trying to respond to your questions. Let's see what we have got. It's not to say this is all we're going to cover. We'll cover anything you want. Like I said, it's your time. But let's start off, if you can, with whatever you already told us you want us to cover. Let's start that way and we'll see what else we have. >> Mike, by the way, this new presentation is already put on the Wiki. If you all want to access later, you can follow along. >> MIKE HENDRICKS: Carol, I'm glad you said that. Yes, thanks to the wizardry of people, not me, other good people, they have taken these PowerPoints that you don't yet have in your hands in paper, they are on the Wiki. You can get them there. They are also on the online feed, if I'm not mistaken. People who are watching online, you will see the same PowerPoints that we're all seeing here in the room. Good. Anything else, Carol? That was good, thank you. Let's start off here. Bob and I, like I said, we're going do this together. One of your questions was how can we select good outcomes. That is a big question. You can imagine. Let's try to talk about it a little bit and for each of these see what other ideas you might have. First thing we would suggest, first of all, remember what a outcome is. You saw this slide before. I hope you are all very clear that outcomes are benefits or changes for participants during or after program activities. It's different from the outputs, which is the volume of work accomplished. Okay? It's the benefits or changes that we're looking for. That is what outcomes are. Then we suggested some particular sources that you might go to. We suggested that it was not a good idea to just go to program staff and ask them what they thought the good comes would be. That it would be really good idea to go to a lot of different people. That is a way we think, in fact that is probably the main way we would suggest you develop what you might call, quote/unquote, good comes. Get a lot of different perspectives on it. We also made suggestions about writing a outcome statement, how to write it. Again, our suggestion is a target group plus a present tense verb, then whatever it is you want to happen. So that combination of remembering what a outcome is, sources of where to go to brainstorm, then how to write them up, is kind of I think, that maybe all we can suggest about how to, what was the question exactly? How can we select good outcomes. This is our session. This is an open session. Somebody else, maybe the person who asked the question has an idea. Maybe somebody else has an idea. Anybody have anything? Bob, you have something? Anything anybody wants to add to this? This is like a group brainstorming session together. Yeah, Dan has something here. We're open to everybody's ideas. That is why it's a workshop. >> This is Dan Kessler from Alabama. A couple of ways you might want to select is to look at the new program you're implementing, not quite sure how it's going to work out might be one way. Another might be you're looking at some changes to some staffing programs, not quite sure what direction to go, whether to continue or make adjustments, that might be another way as well. I guess maybe looking at the priorities of the center for a given year might be way of going about that process. >> MIKE HENDRICKS: I like that, Dan. You're taking a slightly different angle and saying of the different possible outcomes you might be looking at, how to, you're focusing on the word select here. >> Right. >> MIKE HENDRICKS: How to select which of many. You're saying maybe a new program, maybe a program having some problems, something like that. I think that is good. I like that. Other ideas about selecting good outcomes? Your next question was can you go over the logic model again and how indicators fit on it. I'm not going to do this slowly, don't get me wrong, but quickly because I think a lot of us now have it probably since this question was asked. Let's do it real quickly. So remember the logic model is a conceptual chain of inputs leading to activities, leading to outputs, leading to different levels of outcomes. That is conceptually what a logic model is. This is the way we tend to draw them out with the inputs down here at the bottom. Remember, think the next slide says if then. Yes, remember if then, if these activities, then this outcome. Down here it would be if we have these inputs, then we can do these activities. If we do these activities at a certain level we will have outputs showing how hard we're working. If we work hard we'll start having these different outcomes. If then logic working its way up. I got to thinking that maybe part of the confusion was in this first part, we were showing you inputs, activities, outputs and outcomes, all four components of maybe what you call the full logic model. Certainly here we show all four components. Yet in my opinion at least, the essential stuff are the activities and outcomes. So when I kind of in reality do logic models, I tend to focus on the activities and the outcomes. That may be what confused someone. Here you see we just have activities going up to outcome then this outcome then this outcome. Here we have activities with outcomes above it. Maybe somebody got confused. Maybe they were looking for inputs and outputs and not seeing them. I don't know. Here is, forgive me because when I transferred this slide over, I completely lost the color for some reason that I'm not capable of fixing. This was the task forces proposed by the model for the CILs program. You can see it also has activities or activity boxes, as someone pointed out. Maybe that was part of the confusion. Then the question was where do the indicators fit. The indicators, remember the Christmas tree ornaments hanging on the tree. The indicators, that is what we measure to define what we mean by the outcome. You can see how they hang on the outcome. There's an indicator for each outcome. Or maybe two indicators or three. As many as you need. That is a quick review and how the indicators connect. Anybody want to say something else about that? Yeah, we do. >> I have a question on that process. I'm glad you went through this again. >> MIKE HENDRICKS: We did it because you wanted to. This is your session. >> Thank us. So it was activities then inputs. Then you keep going up. >> MIKE HENDRICKS: Go back. >> I keep thinking about going back to our strategic plan. >> MIKE HENDRICKS: Inputs first. >> Inputs first. >> MIKE HENDRICKS: Then the activities. >> Okay, I keep thinking going back to our strategic planning, making sure it's addressing outcomes. Using this process. >> MIKE HENDRICKS: Great. >> With our strategic plan, which I'm sure will need some work. But so often I think that we get stuck because we go all the way through this. The first step is inputs, and we don't have the necessary inputs. >> MIKE HENDRICKS: Ah. >> You have gone all the way and you go wow, this is really cool, all laid out for us, but a lot of things in the inputs category that are not available to us. Then you go back and adjust it for what is realistic. Do you continue to dream and hope you find a money tree? What is your suggestion there? >> MIKE HENDRICKS: Remember, it's a logic model. Going back up 1 bit here. It's a logic model and supposed to be logical. So for instance, you're really saying when you develop this piece of paper, you're really saying, if we have these inputs, then we can do these activities. So what you're saying is sometimes you look at it, and you don't have all the inputs you need to do those activities. Well, that is illogic, right, a logical gap, a flaw. That is a huge advantage of doing a knowledge lotic model. You see that, my gosh, we don't have the right inputs for our activities. That is what you do. You stop and you say something has to give. Either we can't do that activity or we have to get more inputs or something. There's this mismatch between them. That is exactly one of the ways you would use a knowledge logic model to ask yourself, does this make sense. Sometimes it won't. Yeah, okay. Anything else about that? I know what I wanted to say. You were just talking about sometimes when you look at a program and you don't have the inputs, Dan Kessler was talking to us at the break about what I mentioned about the implementation training we did at the cil Congress. He has actually watched it, poor guy. >> Not the whole thing. . >> He was surfing one night. >> Yeah. >> MIKE HENDRICKS: Surfing parts. >> Yeah. >> MIKE HENDRICKS: Actually if you're interested in implementation, if you're interested in looking at whether you have got out there what you think is out there, Dan's feeling was that it was a pretty practical, sensible step-by-step process we laid out there. You might want to check that implementation part of that Wiki out. I think it would be maybe helpful. Next question, can indicators measure qualitative outcomes? I'm at a disadvantage because I'm not exactly sure what the person met by qualitative outcomes. I'm thinking, tell me if I'm wrong whoever did it, maybe they meant something like can you measure feelings or attitudes. More squishy things that aren't like behavior you can actually see. You know, the condition of the streets or something like that. I thought maybe that was what they were saying. If that is the case, then I would say, heck, yes, absolutely. Like for instance, in our field test, we measured whether people felt they were more independent. Right? . >> BOB MICHAELS: Right. >> MIKE HENDRICKS: So number and percent of CIL consumers who feel more independent. Number and percent of parents who appreciate, these are just made up, obviously. Who appreciate what the CIL has done for their child. Number and percent of city council members who have a hospital attitude towards us. You can see who typed this. Towsards the CILCs. (Laughter.). >> You can measure squishier things, you know, than hard behaviors or conditions, things like that. Now, you might ask the question, how do you measure them? The answer is, again, there are people who make a living who build whole careers in knowing how to assess attitudes, how to check values, things like that. It's extremely doable. Extremely doable. If the person who asked that question, if I misunderstood and you want to do it again, that is fine. If I have gotten it sort of close. Bob, you want to add something? . >> BOB MICHAELS: Yeah, does that reduce the amount of options you have when you're talking about the sources of data? >> MIKE HENDRICKS: Let's think about it. A darn good question. These are your indicators. Remember we talked, first you develop the outcome. Then you develop the indicator of that outcome. Only then do you start asking yourself where am I going go, what is the source, where am I going to go to get that information. So you're saying if you have this kind, does it limit the possible sources? . >> BOB MICHAELS: Certainly would. So I'm trying to think, I mean you pretty much have addressed. I'm trying to think what else would work. >> MIKE HENDRICKS: If you want to know about consumers who feel more independent, yeah, certainly that is the obvious thing is to go talk to consumers, right? And parents and city council members. >> BOB MICHAELS: There isn't something you can observe. >> MIKE HENDRICKS: If you were observing, like number or percent of city council members who vote some where towards a CIL, that is a different indicator, isn't it. >> BOB MICHAELS: Yeah. >> MIKE HENDRICKS: That might be go look at voting records might be the source. Or observe city council meetings or whatever. But if the two have a positive attitude, yeah, you may well be right. That might be specifying then pretty much what your source has to be. Like I say, it's have doable. (Phone ring). Let's go to the next question if we can. Can we give more examples of IL outcomes and indicators. Probably not without worrying people to death. But I think maybe that question got asked before Bob had told that in your materials, there is a sheet of the eight outcomes the task force used and the 11 indicators for those. Hopefully that will help the person who asked the question. Yes, sorry, we write it here. There's the list of the field test outcomes and indicators in your materials. I thought if you want to, if somebody wants to throw out a outcome, we can together see if we can brainstorm an indicator. Anybody have a CIL outcome they want to throw out that hasn't been discussed? I'll start with one. >> BOB MICHAELS: Yeah, the one this morning. >> MIKE HENDRICKS: Let's do that. What exactly was that outcome? . >> BOB MICHAELS: Number --. >> MIKE HENDRICKS: Not the indicator, though. Remember the outcome. >> BOB MICHAELS: That people with disabilities are employed. >> MIKE HENDRICKS: People with disabilities are employed. There you go. >> BOB MICHAELS: Full time or something. >> MIKE HENDRICKS: There you get into the indicator. What do we mean? How would we measure persons with disabilities, and we'll say the CIL works with, not all, but the ones the CIL works with, are employed. Help me come up with an indicator of that. Like we said the other day, you can't measure just that. You have to have more meat on the bones to figure out what you're going to measure. What would be an indicator of that? Anybody. I'll call on you if you don't volunteer. You're smiling, you must have an answer. Give it a shot. Come on. Use your microphone, introduce yourself. Give it a shot. Start off with number and percent of. >> Nancy Mcfar land from opportunities for access in Alberta, Illinois. I was thinking number and percent of consumers who are still employed after so many months. I would put number of months in there. >> MIKE HENDRICKS: Let's just friendly push you. What do you mean by employed? >> Employed, yes. Employed, I would say full or part time. I think I would make it two different ones. Even part time employment is employment. >> MIKE HENDRICKS: Interesting. It's Nancy? >> Yes. >> MIKE HENDRICKS: Nancy is having two indicators. One full-time employment, one part time. Perfectly legitimate if she thinks that will give her the information she needs. What would then be the full-time employment? Number and percent of? >> Number and percent of consumers who are employed full-time for, say, 3 months at least. >> And part time, how might that be worded? >> Number and percent of consumers employed part time for, I would say, 3 months also on that. >> MIKE HENDRICKS: What does part time mean? >> Part time would mean approximately, I would say approximately 15 hours to 20 hours a week. >> MIKE HENDRICKS: Okay. So again, if I'm the totally unfamiliar person trying to measure this, you have to tell me. What is the minimum I'm looking for here? How many hours at least? >> Min number of hours for part time would be 15 hours. >> Number and percent of persons with disabilities. >> Number and percent of persons with disabilities employed. >> MIKE HENDRICKS: At least 15 hours a week. >> For 3 months. >> MIKE HENDRICKS: There you go. Those are good candidates. Another candidate? Someone else I can humiliate? You did actually great, thank you. >> Only one thing I would add to that. That is minimum wage. >> MIKE HENDRICKS: Ah. What do we think? Does it have to be a minimum wage job? Bob, your outcome, did your outcome say minimum wage job? . >> BOB MICHAELS: No, it didn't. >> MIKE HENDRICKS: This is a fantastic example. So glad you said that. Fantastic example of what I mean by the indicator defines the outcome. The indicator defines exactly what we mean by the outcome. Now, if we decide that the indicator should say minimum wage job, then we're defining Bob's outcome in a certain way. If we don't include minimum wage, then we're defining Bob's outcome in a different way. So it's really important here, isn't it. This is what I meant by the indicators are critically vital because they will define what we mean by the outcome. Was that a hand? It is, please. I'm glad you said that, Mary, it's wonderful. >> Just to build on it. If it was my question, I would want to know for the part timers how many people maintained SSI or SSD benefits and how many people were working part time who were not on that. I don't know if I have to specify. What that is getting at is the level of income. Minimum wage would probably maintain SSI, SSD at 15-20 hours. Somebody at higher income would be phasing out of that with work incentives, et cetera. >> MIKE HENDRICKS: You're saying you might need to be really careful about the kind of part-time job you're trying to help people get? Is that right? >> The indicators would reveal what the success we are having and tell us something about the inputs and the activities and the outputs that we are, and those values, whether we are directing people one direction or not. >> MIKE HENDRICKS: I like that. You're thinking ahead. What if we do pretty well on this. What are the implications for the people. I like that. Okay. Anything else about that indicator? >> Mike? Over here. Carol. >> MIKE HENDRICKS: Thank you. >> We have a comment from Cheryl about this discussion. She said, could have indicator about number employed at or above SGA level, could at several months. >> MIKE HENDRICKS: Anybody knows what SGA. >> Substantial gainful activity. >> MIKE HENDRICKS: You all know. I'm the one who doesn't. Does that make sense? What she said? Excellent comment. Thank you for that. Excellent. You can see, yes. One more, this is great. >> This is Joan from Corvallis or Salem, Oregon. Seems we ought to say 15-39 hours so we define what part time is. Otherwise we included everything. >> MIKE HENDRICKS: Really good. I missed that completely. You're right. If we have one full time and one 15 and above, some people will be double counted. Excellent, that is the kind of of glitches you can get into. That is good. Yes. >> If we're going to get into this at this level, I think we need to add the component of integrated employment. You could be working in a sheltered workshop, obviously, at minimum wage. We're addressing the quality of employment. If we go down that road. >> MIKE HENDRICKS: Think it's a good comment and I think you do need to go down that road. Again, back to the point. We are defining what Bob meant by his outcome. If you think only a certain kind of employment should be counted, then by gosh, our indicator has to be very specific about that or else we won't be getting the information we want. See what I mean now? Starting to see the indicators are the real heart of this process. You really need to spend time on your indicators. Think we had this table, then I'll come back to you. Someone at this table, I think it was. Go ahead, please sir. >> Yeah, thank you. I was going to make the comment that really this whole issue of integrated and nonintegrated is big, and I'm glad somebody brought it up. The other one, if you intend to use the data later on to get grants there are some standard definitions about what full-time employment is. Usually it's considered to be 32 hours or more. And when part time employment can be anywhere, I have seen some definitions that go town as low as three or 4 hours a month. You might want the look at those definitions again and say if we get this done and if we want other funders to look at it, how much should we standardize our definition of things like full and part time. >> MIKE HENDRICKS: Great suggestion. I didn't think to mention. You're so right. We have to be sure anyone who looks at our indicator in the future will accept it, will accept that that indicator makes sense to them too. You're saying if there's some standard definitions that our audiences will be focusing on, then we're making a big mistake by coming up with our own definition that is different. Really good. I like that. Over here. >> I wanted to clarify something about if the outcome is people are employed. >> MIKE HENDRICKS: Uh-huh. >> We all talk about a lot of different variables. Integrated, nonintegrated, full time, part time, what was full tile, what was part time. We're talking about a lot of indicators. I know from my experience, I have people who don't want to work more than 5 hours a week but they have been doing that for 5 years. I would count them as employed. I guess what I need clarification is that we could have all these different variables, whether they were part time this, part time that. All those different things could be indicators that would all meet that one element. >> MIKE HENDRICKS: You could, I wouldn't recommend it. I thought the distinction between part time and full time was a significant enough difference that probably makes sense, at least to me, to have one indicator and a second indicator. Maybe not to you, but to me that seems to make some sense. These other things we're talking about though, like for instance, what is the definition of part time, what kind of employment, in what kind of a setting, that seems to me more like decisions we ought to make that would apply to both indicators. Sort of further specification of what we mean by each indicator. You may feel differently. That is fine. I think --. >> It all needs to be integrated and all needs to be a minimum wage. >> MIKE HENDRICKS: Whatever you decide. >> Yeah. >> MIKE HENDRICKS: Think your instincts are right. Better not to have 12 microindicators, you know. I think your instincts are exactly right. >> BOB MICHAELS: You know we had really interesting discussions about this when we got into the area of the overall outcomes. We talked about that communities being accessible. What does that mean? We started playing with that indicator to try to figure out what that meant. What does it mean to be a hundred percent, housing to be a hundred percent accessible? Well, hundred percent of new homes built into the community are adaptable. You know, employment, the unemployment rate for people with disabilities was no higher than employment rate for everybody else. So we just did that and started going through those. Then realized, wow, we're not there at all yet. And that is how we started. There's no way we're going to go up to being fully accessible, a fully accessible community. So you know, it may sense to what we did then. >> MIKE HENDRICKS: Yeah. >> BOB MICHAELS: To go down lower. Because if you set your goal up here to be the same unemployment rate as everybody else, well, you might, you know, in 80 years, but only if we had thought of the things first. Pat. >> I'm thinking that, this is Pat from Georgia, I'm thinking we should set that goal for voc rehab though. Sort of joking and sort of not. But you know, the fact is that when you look at the rate of participation of people with disabilities in education beyond high school, that is the area where I feel we have in fact improved a lot. As we know, education and employment are distinctly connected. And so from the perspective of the world of people living, pushing people to get education and helping them to understand that they have opportunities, educational opportunities, to me is a very definitely a role for centers. It's one of those intermediate outcomes that ultimately result in employment. So to me it's more of a goal that is suited, sorry, I said the word goal. Do I get find? >> MIKE HENDRICKS: We'll talk later. >> Okay. If we set that outcome, intended outcome, it's more in line with what it's about rather than VR. Does that make sense? . >> BOB MICHAELS: Was that a good exercise? >> This is my favorite. The scenarios you have, if they would have been IL programs, I would have came away with this training a lot more. I heard from other states in the room about different programs that IL-CILs do. It would give me a different perspective instead of going back to my center and possibly within my state and giving a perspective that, you know, I think I would have walked away from this training with a lot more guts and material, you know. >> MIKE HENDRICKS: You mean instead of the after school program for kids? You would have rather have it focused on CIL? >> I think I would have walked away with a lot more opinions with my copartners in the room and may helped my center out. For newer directors I'm sure it would give them a lot more. >> MIKE HENDRICKS: Good feedback for the next time, thanks. Let's just in the interest of time go to the next question. Instruments that are valid and reliable to measure CIL outcomes. I think the question was do they exist out there already. You know, can we just draw on them. Do we have to make them up ourselves. I honestly can't answer this question because I'm not an IL expert like a lot of you are. Bob and I, when we started working with the task force, we looked for stuff. We looked a lot. We tried to steal, we talked about brag and steal, we tried to steal the best ideas but didn't see a bunch. The only advice we could give would be the NCIL task force members, and we can get you a list if it's not on the Wiki, those people were chosen because they know this stuff, especially research side. Other experts in the IL field, whatever literature you think would be the proper place to go. Beyond that I'm kind of at a loss of what to suggest for you. Does somebody out here have or online, somebody have suggestions of where to go? The question was some instruments, meaning like survey instruments or interview guides or questionnaires or observation checklists, something like that. Already been done so you don't have to reinvent the wheel. Pat my know something here. >> The one that came to mind, and it has to do with nursing facility transition. The federal money follows the person project has an interview, quality of life interview survey that is given to the person while they are still in the nursing home and 6 months later and I think maybe a year later. So it's got, it's very outcome oriented and asks questions like did you decide what you had for dinner last night. Those are the kinds of things that are indicators of a person's choice and control. So that to me would be one of those things that you could pick up from the CMS website or the AVRC website that would be a real easy thing. >> MIKE HENDRICKS: Good. You got that suggestion from Pat. Sounds like a good one. >> BOB MICHAELS: When we first started doing this, we had a number of different states and even Canada. You know, a different country, telling us we're already doing outcome measures. So we went to them and said give us what you are doing and let us see it, we want the try to incorporate it. But within a very short period of time, we were way ahead of where they were. So we didn't do a lot of that. In fact, many places now are watching us to see what we are coming up with. So we really are leading the field here. You need to be proud of that. >> MIKE HENDRICKS: Their next question was more about the definition of at risk. >> BOB MICHAELS: Now, I have it right here. >> MIKE HENDRICKS: Go for it. >> BOB MICHAELS: You have that definition in your training manual that was in your folder. I'm going to go ahead and read it. Please bear with us. A second approach is more technical but comes from the legal case. So use it as you need to. You can decide a person is at risk if he or she meets the level of care criteria needed for nursing home admission in your community, and you also faces any one of these three other situations. Is likely to require admission to a nursing facility within the next 120 days. Has a primary caregiver who has a disability. Or is over the age of 70. Or faces a substantial possibility of deterioration in mental and physical condition or functioning if either home or community based services or nursing facility services are not provided in less than 120 days. If a consumer fits these criteria, then you ask yourself, then you yourself can decide if he or she is at risk. Simple, yeah? >> (Laughter.) . >> BOB MICHAELS: This was the hardest definition for us. We have gone through it and through it and through it. There was the University of Massachusetts was that. >> MIKE HENDRICKS: Right. >> BOB MICHAELS: They put in to do a research project that would key in on this for identifying what is at risk. Actually coming up with definition. We actually got an advisory board and they didn't get the grant. But somewhere along the line this has got, we thought that maybe CMS would have it and would have something like that. They didn't. So at this point we don't have anything. But it's one of those areas that needs some attention. Somewhere down the road, not too far in the distance, we're going to get it. >> MIKE HENDRICKS: Just realized, for people on line maybe this is their first week working at a CIL and they don't know what this is about. It's at risk of being institutionalized. There are persons with disabilities in the community that are not at risk of being institutionalized. A lot of them in this room for instance. A lot of of them are at risk of being institutionalized. Knowing who is which is really really important. Not only for our outcome management efforts, but also politically. So that is why Bob and I say that this is a really important issue for the IL field. I know there are people in Washington looking at budgets these days, and they are going to want to know, are you all really saving us money by keeping those at risk people out of expense of institutions? You can't answer that question at all if you don't know who is at risk out there in the community. I'm just, frankly, as methodologyist, I was really surprised at how little agreement, if you would say, there is in the IL field on how, I expected a much clearer definition. Maybe Fred has it. I expected a much clearer definition. Bob and I both really think as a field, IL has to work on this more than it is. We were both very disappointed that this grant to do just that, this grant was going to try to figure out better ways to identify people who are at risk. We were very disappointed the grant wasn't funded because we just think it's really needed. >> Fred Johnson, North Carolina. In North Carolina, the percentage of people who are at risk of being institutionalized is nearly a hundred percent. >> MIKE HENDRICKS: Nearly a hundred percent. >> Especially if you are a person, not necessarily a person with a disability, but if you are a person who has, for example, fallen or had an accident on your property, you go to the hospital, they ask you if you have anyone at home to provide you with any kind of assistance. If you say no, and you can't find a service to the provide that kind of attendance, then they funnel you in a nursing facility. >> MIKE HENDRICKS: If I can interrupt and say you're doing exactly what we think needs to be done. If a person has fallen, if a person doesn't have provider to care for them, and something else. You had three of them there. Then you would say they are at risk. But there's not consistency or agreement around the country about what those are. >> Exactly. >> And that is because, and this is for down the road, Charlotte, North Carolina, so much is tied into Medicaid funds and that is the state by state problem. >> MIKE HENDRICKS: Hmm. >> Waivers and vouchers and other things that North Carolina doesn't know anything about. So it is not possible to have a federal definition that is going to help anybody. >> MIKE HENDRICKS: You think it's not. >> I don't. Because I know that the people, Fred is exactly right. Just about everybody in North Carolina that falls down is at risk of going into an institution. >> MIKE HENDRICKS: Okay. >> We have seen that over and over. We may have friends in Massachusetts who say, well, no, we have this grade Medicaid or med care or whatever, waivers or vouches. But we don't. As long as it's a state by state option for those kinds of things, because so much of the funding is Medicaid, by the time we have a national definition, it would only be people. That is the only thing they have in common. >> MIKE HENDRICKS: I'll give you my personal opinion. Bob may disagree. Maybe they have already done it. Forgive me if they have. Someone needs to look across all the state definitions and figure out way to handle when you aggregate them together. People in Washington do care about this question. Lots of comments on that. >> I have a question. Say the primary caregiver has a disability. >> MIKE HENDRICKS: If the primary care giver has a disability, would that put a person automatically at risk. I would say darn good question. Do we as a field know the answer to that? . >> BOB MICHAELS: That is part of this definition. >> I was asking why that, or how that. >> How and why did that get into the question. >> BOB MICHAELS: Yeah. I can't really tell you why. We asked the state call to give us that definition out of the lawsuit in Louisiana. So I don't know what he was thinking or what they were trying to accomplish. I don't want to answer for him. >> MIKE HENDRICKS: In the interest of time, let's take one more and let's move to the next question. We can always come back to this if we have time. >> I actually think that at least in the area of gerontology there's been a fair amount of research on who is and is not at risk. For example, cognitive impairment, seniors who have cognitive impairment places them at greater risk. And when incon tinnant occurs consistently is the other variable. Are you confused and do you pee your pants, or poop your pants, whichever. Those are a couple things at least for the validated gerontology arena are clear factors. I do not think there have been as many studies validated for people that are not considered seniors. But I suspect that it would not take a lot to figure that out. You know, the fact is that we know from the data that, in our state at least, the number of people under the age of 65 that are going into nursing homes has increased over the last decade. So when I started watching the Medicaid data, it was 11 percent. Now it's up to close to 17 percent. And the variables to me are so complicated. Because a lot of it has to do with the cutback on rehabilitation services in the health insurance world. I mean the average length of stay now for a newly injured paraplegic is 18 days and quads have 32 days. We were talking earlier about the old quads in this room, you know. Sorry, the quads whose injuries were a long time ago. >> There you go. >> (Laughter.). >> Veteran quads, you know, got rehab four to 8 months. >> Yeah. >> So if you have the opportunity to learn how to live with your disability in a rehab environment, then you are, the impact on long-term care is lessened. So it's extremely complicated variablewise to figure out exactly what leads to nursing facility placement. >> MIKE HENDRICKS: Our task force found that. It's very come indicated. >> BOB MICHAELS: Yeah, yeah. It's funny because you were saying four to 8 months for the rehab for the old-timers. And I was in the field at that time. People were complaining that that wasn't long enough. >> Really. >> BOB MICHAELS: They were saying you know, I have 9 days of coverage on my insurance, and lo and behold, on day nine, I'm cured. >> Uh-huh. >> BOB MICHAELS: Time to go home. >> Exactly. >> BOB MICHAELS: You hear that over and over and over again. But it really appears that, you know, when University of Massachusetts people were looking at this, they seemed to be really keying into activities in daily living, which really gets to what Pat was talking about. That might be an area to take a look at all the different states really makes sense. >> MIKE HENDRICKS: Let's go to the next question if we can. Bob, this is for you buddy. I don't know the answer. How do our outcome measures relate to the current 704 report and other federal requirements for information. I know it's in the 704 report and I know that, but I don't know this other part about other federal requirements for information. >> BOB MICHAELS: Doesn't relate at all. >> Yet. >> BOB MICHAELS: We should have Pat give this discussion about it. We found she couldn't do it without saying the F word. >> MIKE HENDRICKS: Federal? . >> BOB MICHAELS: Any how, yeah, there isn't anything in there. But it was really a nice thing they talked about yesterday, how they want to try to get with us to incorporate this. You know, when we first started doing this, we had a lot of involvement of folks. Then they just passed away as time went. They just got away from it. And so not paying attention, I shouldn't say not paying attention. Just letting us do our work and they were doing theirs. It was really irritating at times when grant they gave up and gave them to other people. So NCIL has invested a lot of money in getting this done. It's nice hearing linae talk yesterday about trying to find some way to get in there. It's good to hear we don't need to wait for reauthorization, if that doesn't happen, we can go ahead. I don't know what the impact will be of the ILA, the Independent Living Administration. That is hard to tell. There are probably people in the room, or were in the room, that know more about this than I do. >> Carol has something from online. >> There's a comment from Cheryl on this topic. I thought I would mention. It says I missed most of the presentation yesterday. During the RSA presentation, was there any discussion about the direction of our 704 report as moving as it relates to outcome measures, and if so when will we see the changes in for reporting? If not should CILs move to using outcome measures for its work plan. >> BOB MICHAELS: Cheryl, you know, I was kind of alluding to, I could explain a little further, Linnae was in fact saying, asked a question about the 704 report, and she said she was interested in making changes in the report and will work along with us in doing that. She wanted to see whether or not those can be reauthorized because if it's reauthorized, then they need definitely to, they will need to do the indicators or the regulations again. She didn't want to do it twice. So there were just, you know, ordering that. She was very interested in making changes and getting, and she was very much open to doing that. That was great. Anybody want to add anything else? >> MIKE HENDRICKS: Kelly does. >> BOB MICHAELS: Kelly. >> MIKE HENDRICKS: Get a microphone over there somewhere. Richard, hang on. Kelly first then you. >> What I heard her say, Bob, was that she was absolutely committed to working with us on next steps. >> BOB MICHAELS: Yeah. Richard. >> I just was going to say for Cheryl, who may not have heard what we said earlier today, that watch for linnae's presentation as well as the other sessions that many of you missed yesterday. Those should be up early next week. The only limited factor is the speeds with which we can get transcripts of the captioning posted on the website. As soon as we have those, everything from all two and a half days of the training will be up and available for people to view. >> MIKE HENDRICKS: Another question I can't answer but I'm sure Bob can. What does the new rehab plan say about outcomes, our approach, et cetera? . >> BOB MICHAELS: I think when she says the new rehab plan, I think they are talking about the reauthorization. I'm not sure exactly what they are alluding to. As far as I know, doesn't have anything about any outcomes in the legislation. Does it? For them that know more than I do. Shannon, does it say anything? >> Simple answer is no. In our discussions with our committee, though, it all centered back around to the 704 report and how inadequate the collection of that data is to reflect our story. So we still have time to go back. As long as Linnae is willing to move ahead with this, I think we should, after all the information we gathered here today, and use Linnae as a friend do that. >> BOB MICHAELS: Yeah. >> MIKE HENDRICKS: Okay. Might be, yeah, that was the last question that you submitted on Tuesday. Maybe there's something else on somebody's mind. This would be the time. Let me mention. I'm sure you're all thinking of one. Let me mention where we are in the NCIL process, the task force process. We have drafted a report of everything that has happened for the last 5 years. It's all in one document, not even that big. Dan Kessler has read it in his role as president of NCIL. Tim Fuchs has read in his role as basically one of our wise people in the NCIL office. Now they both think it's not so bad we have to start over again, which is nice to hear. We're going to make some tweaks and start sending it out for wider review. So that will be coming out to, first I guess the task force, then the participating CILs, then everybody as far as we're concerned. Everybody. In there we do talk a bit about next steps. I'll say one of the first next steps is to basically kind of step back and ask ourselves, okay, those decisions we made three or 4 years ago about the logic model, the outcomes to choose, the indicators, very first, are we still comfortable with those decisions. If at some point you look at our logic model or look at the outcomes we chose or look at the indicators we developed and you think you have a better idea, you probably do. So share it with us. I think we are really remiss if we don't step back and make sure we're comfortable with all that again. So Dan may want to say something here too. I just want to say, do not feel this train is hurdling down a track that you can't influence at all. Folks in here or on line. When you see our materials, give us some feedback. Right? You think that is fair? . >> BOB MICHAELS: Sure. >> I do have a question. Before I ask, I just want to thank Bob and Mike for your leadership over the past five or 6 years in this whole process. I mean, when I first, you know, Bob did a workshop at the NCIL conference about five or 6 years ago and put up on the screen that, you know, this is going to probably take, you know, maybe in 2011, 2012, 2010 we will be done with this. Looking at, boy, we surely would like to have something before that. I think you really made sure that we had a outcome or a product, I think, that we can, you know, NCIL can really be proud of and really can use. So I just want to thank you for that. Everybody else on the task force in the NCIL office, however you have been involved in it. Certainly all those that went through those, again, the guinea pigs at the centers that really put themselves out there, okay, and took that risk. I think that is, that took a little bit of courage to do that. It's not always easy. I did have a question, though. And that is how would a CIL know that they are ready for doing outcome measures? It's kind of like the question like when there's, when you have an audit, financial audit, there are certain things you have to have in place before you have a financial audit. Or else you're not auditable. Similar vein, in terms of outcome measures, what sort of things would you look for to determine whether or not a CIL is ready for all this? >> MIKE HENDRICKS: I can give me thoughts and Bob may have other ones. My thoughts would go back to yesterday afternoon's session on challenges, opportunities and first steps something, I think it was. In there I think we had five things. I'm doing this from memory. Somebody from a handout can maybe help better. Seems we had five things we thought you ought to do first in a CIL. I would look at that. One was top support from your CIL. Board approval and stuff like that. And there were some other things. A person designated as the OEM coordinator with the time and resources. Excellence question. If I were at a CIL, I would look at that list and say are these feasible. Can I do these things. Maybe we don't have enough time. Maybe we're all working too hard for anybody to be assigned as the outcomes manager and coordinator. Maybe nobody has the time. Or maybe the boss really isn't into it. Know what I mean? I think that is a first way I would start. Maybe Bob has a better idea. >> BOB MICHAELS: I tend to be more hard nosed than that. I say damn right you're ready. >> (Laughter.) . >> BOB MICHAELS: Really. If you say, boy, do we have time to do it, no, you never have time to do it. And do we have staff to do it? No. But you never have staff to do it. You always have something else that would be good do first. The tendency is to set it off. Clearly outcome measures are where we want to go. So you're going to have to incorporate at some point. Now, you need to decide, you know, are we ready to do all eight or three or create our own? You know, what makes sense for us. I think you start now, you have all this information available. You have all this next that has been tested and field tests and that. No reason not to start. Monday it will be available to you and archived. All the information we have come up with the last five or 6 years is available to you. No reason not to do it now. There, I said it. >> MIKE HENDRICKS: You said it. Over here, comment. >> This is Joan from Oregon again. Certainly some really nice work. I'm hoping Oregon chooses to build and will work on that. I'm wondering if there's interest in developing measures that everybody would use use or if you're proposing that everybody would more. My guess is the answer is no but I thought I would ask. >> BOB MICHAELS: At some point we're going to have to come back to you before we approach Linnae with what we want to do. We're going to have to come back to you and say, what do you want to be judged on, what measure to you want to have to meet. Because if we're going to talk about changing the 704, we're going to need to do it in a way that you agree needs to be done. Again, I want to say this, we want to supplant information. We don't want to supplement. We don't want the 704 to become even more burden some for you. We want to try to get rid of a lot of that stuff that doesn't make sense. You know, doesn't tell our story, and put in stuff that we need. Richard. >> Can I ask. There, maybe that is on. Okay. First day Mike mentioned how we began the process by responding to the program review tool that had been issued and was out at the time from the federal government. That has gone through some changes. That seems germane to the discussion right now in terms of how we use and how we report and why we even consider a common approach to reporting. So several things sort of to unpack there. Mike and Bob, I wonder if you might address that. That might be interesting to folks. >> MIKE HENDRICKS: I'll take a stab, Richard. If this isn't what you meant, say so. You're talking about the PART score, results not demonstrated that the office of management and budget said. That process does not exist anymore. It's gone away. They don't do that anymore. So if you're concerned about being PARTed again, then that is not relevant. That is what they called it. However, it's not to say something else isn't going to be existing that is going to look at results. Absolutely there is going to be something at federal level, if not education or Congress or all three, somebody is going to be looking at results. Bob is exactly right. We cannot ignore this need. Does that help? Is that what you meant? Yeah. I think Mike over here. >> Mike Wallace. I guess as a brand new center director, I was stunned to discover that we didn't have to do a lot more justification for the dollars we get in the first place. I can't imagine that there won't be some congressional requirements. We ought to put them on ourselves before they do. Taxpayers have a right to know whether or not we're saving them money or what we're doing with it. We can only expect more and more. Seems to me the sooner we do this to ourselves, the better off we are. Resistance as the old cartoon says is futile. >> You must be part of the board. >> Do we have information about the next phase of results oriented stuff at the federal level? >> MIKE HENDRICKS: Last I heard, I have a friend very plugged into this stuff in DC. Last I talked to him, which has been a couple months ago. I can always check back. He tells me they are not exactly sure what they were going to be ending up with. They are playing with different options. I can't honestly answer right now. I can find out more if you want. Maybe you all know. Maybe you know what is happening within RSA or Ed. Seems like Linnae would have said something yesterday if there was a big change happening there. >> Fred Johnson, North Carolina. Just a comment. One of my concerns has been from the very beginning in working at CIL and to establish a CIL in Raleigh, North Carolina, was what is our future as not only a single agency but as a network throughout the state and country in terms of, well, let me just say it flat. I'm very proud that the centers that I understand in North Carolina are run essentially by people who come from the grassroots orientation. I come from a grassroots orientation of nonprofit grassroots level advocacy. The center didn't necessarily have the expertise in the field of business but it had the expertise in the terms of advocacy and stick too ittiveness and openness and willing to accept mentoring and run and take a position within our service area as effective and meaningful. Personally, when it comes to responding to the feds, I don't give them a second thought because I don't have to as a staff member. But I also use my awareness of the feds have given a man date as a center, which is unique, they have said go out there, change things in the system, change things with individuals that you can, work to be effective in this way. Don't worry about anything else. Just do it. We leverage our dollars, we leverage our abilities and hopefully our integrity to the point to where we maintain an effective position within the state, within our service area, and within our brothers and sisters throughout the country. My concern has always been that we will become a bureaucracy, which may eventually happen. But I'm very proud right now that we are grassroots, very basic level advocate type of thinking in the centers. Proud of that for ours and others as well. >> BOB MICHAELS: Always been this big discussion that has gone on among the centers. One center has become a certain size and take on a certain programs that they are going to be corrupted and become part of the bureaucracy. I think that is a very real danger. I used to, when people would ask me how I felt about it personally, I would always talk against it because I felt like, just because, you know, there's a certain size, it became unruly and there's nothing you could do. I have changed over the years now and I don't feel that strongly about that anymore. Because some of the centers have benefited and others, whether label or liberty or access living or the one in Topeka, these are some of the best advocates in the country. They really haven't lost track of what it's all about. So it doesn't have to be that way. You can be a little agency and be bureaucratic. You can be a big agencies and be bureaucratic. But as long as you're willing to say no, I won't do that, you know, and reason it. You can take away the program from me. No matter how big it is. Then we're okay. >> MIKE HENDRICKS: I think we're pretty much at the ends of our sessions. I'll leave the final word to the boss here. I want to say you have been a great group to work with, a lot of fun. I have really enjoyed it immensely. I wish you good luck as you go forward on this important stuff. >> (Applause). >> BOB MICHAELS: Okay, we have already thanked all our staff. I want to thank all of you for participating in this event. It's been great. It's so wonderful, sorry to say, this is pretty much much it. I'm doing a training, but this is pretty much it. I said, we see the outcome thing for the event. I consider this to be the culmination of everything we work on for all this time. I'm going to be around. Not that I'm going to be gone. I'll still be doing classes. But this, these are killers for me. This has been a pleasure, something I'll look back on as wow, what an experience. >> (Applause). (Standing ovation). . >> BOB MICHAELS: Thanks. >> Tim: I want to thank you, Bob, and Mike too. This has really been fantastic. Quickly, I want to remind you all if you could fill out the evaluations before you leave, that is the last thing we'll ask of you before you go today. You have the post survey and the satisfaction survey, if you can leave that on the survey. We'll pick them up afterwards.I want to wish you all a safe trip home. Thank you for being here. Again, like we mentioned, NCIL board will be meeting in the Broadway room across the hallway. If you want to join us, you're more than welcome. >> (Applause)