The National Survey on Health and Disability (NSHD): A Robust Dataset You Can Use

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Collaborative on Health Reform and Independent Living (CHRIL)

About the training

This training addresses the National Survey on Health & Disability (NSHD) that was administered in 2018 and 2020 by the Collaborative on Health Reform and Independent Living (CHRIL) at the University of Kansas. It is a nationally representative sample of over 3,000 adults (18-64 years) that completed the survey online with items covering: access to health insurance and health care services; use of and access to paid and unpaid personal assistance services; employment, SSI and SSDI status; community participation; insurance coverage (including uninsured); unmet health care needs; health status; items related to social determinants of health; and demographics - including multiple measures of disability. 

NSHD lead researchers, Noelle Kurth and Jean Hall, present an overview of the NSHD instrument, methodologies utilized and selected findings (including publications) from the two administrations of the survey to date. Description of the establishment of the NSHD Data Analysis Group is provided, including detailed information regarding public access to the NSHD dataset and how to participate in the established analysis group. The NSHD dataset is rich and robust, and while CHRIL researchers and a handful of others conducted analyses since late 2018, it also has the potential to provide additional insights into many factors associated with health, insurance coverage, access to services and independent living. A Q&A and discussion of how NSHD data could enhance the research efforts of those participating is included – the NSHD is truly a dataset YOU can use!

For more information about the National Survey on Health & Disability go to:

This is a stand-alone presentation to provide detailed information about this national survey. To learn more about the data and survey findings, contact the NSHD administrator, Noelle Kurth,

Target Audience

Staff and boards of centers for independent living and disability researchers.

View the training (01:03:10)

This training is sponsored by the Collaborative on Health Reform and Independent Living (CHRIL). Visit the CHRIL website at THE CHRIL is led by Washington State University with partners at the University of Kansas, George Mason University and ILRU.